Are you or someone you know living with MND, or are you a carer, friend or family member of someone living with MND?

Locally we are able to offer help, guidance and support, we organize monthly support group meetings, regular advice and information sessions, have a team of experienced Association Visitors and also offer financial support.

The MND Association also has additional support available including Benefits Advice, Equipment Loans, Communication Aids Service, Wheelchair Support Service and a team of Regional Care Development Advisers.

WATCH THE ANIMATED VIDEO AND VIEW MORE INFORMATION


 

Available Support

Association Visitors

Association Visitors (AV’s) are trained volunteers who support people living with or affected by MND in their community. They are able to offer emotional support and practical advice, they are knowledgeable of the effects of MND and can provide information on other sources of help available either locally or from the MND Association. AV’s liaise regularly with the Regional Care Development Adviser and can help identify problems as they arise and discuss with you your choices for how they may be managed. They are fully respectful of your choices and wishes.

More information on AV’s is available here

If you would like to access an Association Visitor please contact our local Regional Care Development Adviser, Kerry Palmer by phone 0345 375 1844 or email kerry.palmer@mndassociation.org

Financial Support grants

The Motor Neurone Disease (MND) Association is able to offer some financial support to help with:

  • funding equipment and services that people with MND have been assessed as needing
  • funding for children and young people affected by MND
  • non-paid carers supporting someone living with MND
  • improving quality of life for someone living with MND.

These do not replace any statutory funding that should be available, but can supplement where provision is insufficient, unavailable or not timely.  We are also able to assist with obtaining statutory funding or funding from other charitable organisations.

Who can apply for grants?

Most of our grants can be applied for by the person living with MND, a family member, volunteer or health and social care professional.  However, the MND Support (Care) Grant must be applied for by a health and social care professional.

What grants are available?

There are four grants available to applicants:

  • MND Support (Care) Grant
  • Quality of Life Grant
  • Carers’ Grant
  • Young Person’s Grant

Each grant is explained at the following page, which also details who is eligible, what the grant can provide and who can apply. An application form for each grant can also be accessed here: https://www.mndassociation.org/getting-support/financial-support-information-for-people-with-mnd/

A flow chart is available on the linked page to provide guidance on what grants are available and whether you can apply.

How do I apply?

On the webpage linked, each grant explanation is paired with a link to an online application form.  These are all in word format and can be saved and emailed to us, or printed and posted to us.  Each form will explain what to do.

Support Group Meetings

We hold monthly support group meetings where people living with MND along with family, friends and carers are able to meet new people and share experiences. They are informal, friendly and welcoming and everyone is welcome.

The meetings are held on the 2nd Monday of each month at Kings Garden Centre, Higher Hulham Road, Exmouth EX8 5DZ between 12.00pm – 2.00pm

For more information about the venue click here

Tea, coffee cake and lunches are available from the nursery restaurant

Information / Awareness Events

We aim to hold annual or bi-annual information sessions that are open to all, these sessions give people the opportunity to come and learn more about MND and the support available. Details will become available.


 

Would you like to speak to someone?

Speak to someone at the branch to find out more about what support is available to you:

VIEW ALL CONTACT DETAILS


 

MND Connect

MND Connect is an advice, information and support service for people living with MND, people affected by MND, carers and health and social care professionals. Whether you need to find out how to access services and information, or just want someone to listen, the team is here to help.

Contact MND Connect on 0808 802 6262 or EMAIL MND CONNECT