Achieving a world free of MND

Awareness
National and local promotion of MND.  National Office have a tremendous nationwide campaign to raise the awareness of MND, its effects and impact on families and the need for financial assistance from Government agencies.

Educating social and health care professionals
Seminars and study days organised in local areas, including Special Interest Groups in Exeter Hospice every other month (contact Cynthia on 01395 272966 for details)

Campaigning
Parliament and local MP’s for National StrategyThis project is to ensure that government funds are distributed evenly across the country, avoiding a post code lottery for care and services for people living with MND

Lobbying
Local MP’s about specific local issuesInvolving local MP’s to speed up appropriate housing adaptations, specialist wheelchairs, and raising the awareness of the specific needs of people living with MND.  We need to emphasise the urgency for speed of provision, due to rapidly changing circumstances.

Research
International symposiumThis is an annual event, taking place in a different country each year, where all delegates with an interest in MND, come together to share knowledge of research avenues being explored.  Thus the wheel in not being re-invented in another country.  This year is in MIAMI!!

Raising the profile of the association locally
The committee is committed to raising the profile with a variety of fundraising events – social gatherings at Otter Nurseries and meetings to organise fundraising events throughout the year.

Money
All the above can only be achieved with financial support from the public and businesses.

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